Global Genes

Global Genes is a global non-profit advocacy organization for individuals and families fighting rare and genetic diseases. The organization is associated with a blue denim "Genes Ribbon"[1] that is intended to raise awareness of patients affected by rare and genetic diseases. Global Genes uses a simple concept of "jeans and genes"[2] to promote awareness of rare disease; its slogan is "Allies in Rare Disease".

The organization's mission is to eliminate the challenges of rare and genetic diseases. It works towards this through raising awareness, providing public and physician education, building community support through social media, and funding research to find treatments and cures.

History

The organization was founded in 2009, and is associated with several rare disease awareness campaigns a numerous fundraising efforts.

The organization has gained recognition for campaigns and annual involvement in promoting Rare Disease Day.[3]

References

  1. ↑ "Rare Disease Day spotlighted Monday". Orange County Register. February 26, 2011. Retrieved 24 August 2012.
  2. ↑ "They'll be wearing Jeans for Genes". NorthJersey.com. February 24, 2012. Retrieved 24 August 2012.
  3. ↑ "RemedyMD and the Children’s Rare Disease Network Announce Plan to Give Away Free Rare Disease Research Registry Valued up to $50,000 via Contest". February 25, 2011. Genetic Engineering & Biotechnology News. Retrieved June 6, 2011.
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