Council for Responsible Genetics
The Council for Responsible Genetics (CRG) is a nonprofit NGO with a focus on biotechnology.
History
The Council for Responsible Genetics was founded in 1983 in Cambridge, Massachusetts.
An early voice concerned about the social and ethical implications of modern genetic technologies, CRG organized a 1985 Congressional Briefing and a 1986 panel of the American Association for the Advancement of Science, both focusing on the potential dangers of genetically engineered biological weapons.[1] Francis Boyle was asked to draft legislation setting limits on the use of genetic engineering, leading to the Biological Weapons Anti-Terrorism Act of 1989.[2]
CRG was the first organization to compile documented cases of genetic discrimination, laying the intellectual groundwork for the Genetic Information Nondiscrimination Act of 2008 (GINA).[1]
The organization created both a Genetic Bill of Rights and a Citizen's Guide to Genetically Modified Food. Also notable are CRG's support for the "Safe Seeds Campaign" (for avoiding gene flow from genetically engineered to non-GE seed) and the organization of a US conference on Forensic DNA Databanks and Racial Disparities in the Criminal Justice System.[1] In 2010 CRG led a successful campaign to roll back a controversial student genetic testing program at the University of California, Berkeley.[3] In 2011, CRG led a campaign to successfully enact [CalGINA] in California, which extended genetic privacy and nondiscrimination protections to life, disability and long term care insurance, mortgages, lending and other areas.
CRG has issued five anthologies of commentaries:
- Rights and Liberties in the Biotech Age edited by Sheldon Krimsky and Peter Shorett[1]
- Race and the Genetic Revolution: Science, Myth and Culture[1]
- Genetic Explanations: Sense and Nonsense edited by Krimsky and Jeremy Gruber[1]
- Biotechnology in our Lives edited by Krimsky and Gruber[1]
- The GMO Deception edited by Krimsky and Gruber[1]
- Principles and projects
CRG "fosters public debate about the social, ethical and environmental implications of genetic technologies." They list three central principles:[1]
- The public must have access to clear and understandable information on technological innovations.
- The public must be able to participate in public and private decision making concerning technological developments and their implementation.
- New technologies must meet social needs. Problems rooted in poverty, racism, and other forms of inequality, according to CRG, cannot be remedied by technology alone.
| Selected Issues |
|---|
| Cloning and Human Genetic Manipulation |
| Women and Biotechnology |
| Genetic Testing, Privacy and Discrimination |
| Biotechnology and Agriculture |
| Biowarfare |
| Genetic determinism |
In 2007, CRG hosted a retreat to refresh the mission statement and determine goals for the future of the organization. The outcome was that CRG should:
- Explore and document developments in biotechnology through a holistic approach that considers science within a social, cultural, ethical, and environmental context.
- Serve as a global knowledge resource, providing information and education about the potential impact of new and emerging biotechnologies.
- Develop concrete policy solutions to address what CRG feels are emerging issues in biotechnology.
- Mobilize and collaborate with scientists and other organizations to inform the public and promote democratic control of science.
- Expose what CRG views as over-simplified and distorted claims regarding the role of genetics in human disease, development and behavior.
| Current Projects | Description |
|---|---|
| Genetic Bill of Rights | a set of guidelines to aid in the understanding of CRG's viewpoint on the ethical, legal, social, and environmental implications of biotechnology, meant to foster discussion on the values CRG feels are at risk due to advancing genetic technologies |
| Race and Genetics | a project including briefing papers and community workshops on various areas where race and genetics intersect, such as racialized medicine, race in science, and racial profiling in DNA databases |
| Gene Myths | a series of articles disputing what CRG feels are exaggerated and misrepresented ideas about the power of genetic technologies |
| Forensic DNA | a discussion on the use and regulation of forensic DNA databases with concern for privacy and civil rights |
GeneWatch
The CRG publishes GeneWatch, America's first and (according to CRG in 2009) only magazine dedicated to monitoring biotechnology's social, ethical and environmental consequences. The publication covers a broad spectrum of issues, from genetically modified food to biological weapons, genetic privacy and discrimination, reproductive technology, and human cloning.[1] The publication won the Utne Independent Press Award for General Excellence in the category of newsletters in 2006.[4]
People
- Staff[1]
- Sam Anderson, Editor of GeneWatch
- Jeremy Gruber, President and Executive Director
- Sheila Sinclair, Operations and Projects Manager
- Kathleen Sloan, CRG Conference Coordinator
- Andrew D. Thibedeau, JD, Senior Fellow
- Board of directors[1]
- Sheldon Krimsky, PhD - Chair
- Jeremy Gruber, JD - President and Executive Director
- Paul Billings, MD, PhD, FACP, FACMG - Vice Chair
- Peter Shorett - Treasurer
- Evan Balaban, PhD
- Sujatha Byravan, PhD
- Robert DeSalle, PhD
- Robert C. Green, MD, MPH
- Rayna Rapp, PhD
- Patricia J. Williams, JD
- Former board members[5]
- Francis Boyle, JD, AM, PhD - former board member[6]
- Ruth Hubbard - former board member
- Claire Nader - former board member and chair
- Richard Lewontin - former board member
- George Annas, JD, MPH - former board member
- Tania Simoncelli - former board member
- Lola Vollen, MD, MPH - former board member
- Philip L. Bereano, JD, co-founder and former board member
Funding
A major source of CRG's funding is the Ford Foundation, which provided $420,000 in grants during 2005-2007.[7]
See also
References
- 1 2 3 4 5 6 7 8 9 10 11 12 "Council for Responsible Genetics". Retrieved 2009-05-29.
- ↑ "Broadening Our Perspective". Retrieved 2009-05-30.
- ↑ https://www.bloomberg.com/news/2010-08-12/uc-berkeley-backs-off-gene-test-program-for-students-blocked-by-state.html/
- ↑ "Winner of the Utne Independent Press Award for General Excellence: Newsletters". Utne Reader. January 2007. Retrieved 2008-09-11.
- ↑ http://www.councilforresponsiblegenetics.org/Help/Directors.aspx
- ↑ "Francis Boyle", University of Illinois, Accessed June 16, 2009.
- ↑ "Grant Search Results". Ford Foundation. Retrieved 2008-09-11.