Motor Neurone Disease Association
 | |
| Founded | 6 October 1979 |
|---|---|
| Type | Charitable organisation |
| Registration no. | England: 294354 |
| Focus | Motor Neurone Disease, health policy |
| Location |
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Area served | England, Wales and Northern Ireland |
Members | 8000 |
Key people | David Niven |
Employees | 140+ |
Volunteers | 3000 |
| Mission | A World Free of MND |
| Website |
www |
The Motor Neurone Disease Association (MND Association) is a British charity, operating in England, Wales and Northern Ireland, established in 1979 by a group of volunteers to coordinate care, support, and research for people affected by amyotrophic lateral sclerosis, which is a form of motor neuron disease (MND) (and also as Charcot disease or, in the United States, Lou Gehrig's disease).
The Association's Chief Executive is Sally Light. Its President is neuroscientist Colin Blakemore. The Patrons of the Association are HRH The Princess Royal, neurologist and four-minute mile record breaker Roger Bannister, entrepreneur and philanthropist Joel Cadbury, palliative medicine consultant Baroness Finlay, neuroscientist, broadcaster and author Baroness Greenfield, world-renowned cosmologist Stephen Hawking (who is living with MND), former Chief Inspector of Schools Sir Chris Woodhead, challenger and entrepreneur Richard Noble OBE, Jamie Niven (Senior Vice President at Sotheby's art dealers in New York and younger son of actor David Niven, who died from MND), former English cricketer and current official Chris Broad, and American businessman James Sherwood.[1]
The Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by Motor Neurone Disease. It is a membership organisation with nearly 8,000 members forming a national and local network that provides information and support alongside fighting for improved services. It has over 3,000 active volunteers in England, Wales and Northern Ireland and 140-plus paid staff, who are dedicated to improving the lives of people affected by MND.
Activities
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Research
The Motor Neurone Disease Association funds and promotes research to understand what causes MND, how to diagnose it and, most importantly, how to effectively treat it so that it no longer devastates lives. It does this by:
- Funding research
- Coordinating research through conferences and symposia
The MND Association organises the International Symposium on ALS/MND, an annual event which brings together leading international researchers and health and social care professionals to present and debate innovations in their fields.
The MND Association funds research that includes animal testing.[3][4]
Care and information
- Provide information to patients and carers
- Provide care through a network of branches and regional care advisers
Fundraising
- Fundraising and income generating activities
- The Association has 92 volunteer branches and groups across England, Wales and Northern Ireland, that assist with regional fundraising activities
- The Association benefits from legacies and also Trust Funds, which are left in the memory of people affected by the disease.
Awareness and campaigns
The association has a campaigns network that helps shape a better future for people with neurological conditions such as MND. It does this by:
- Lobbying government
- Raising awareness of the condition using the Associations's Five Point Charter, which aims to make sure all people with MND receive the right care, in the right place, at the right time.[5]
External links
- Homepage for the Motor Neurone Disease Association
- Facebook page for the Motor Neurone Disease Association
- Twitter account of the Motor Neurone Disease Association
- International Alliance of ALS/MND Associations
- MND Scotland, an independent charity registered in Scotland, and the only non-research charity working in Scotland for those with MND
References
- ↑ Archived September 27, 2008 at the Wayback Machine
- ↑ "Press Office - Hawking Benedict Cumberbatch". BBC.co.uk. 2014-09-24. Retrieved 2015-05-20.
- ↑ "Models of MND". MNDassociation.org. 2015-05-16. Retrieved 2015-05-20.
- ↑ "Health Charities and Animal Testing". Animalaid.org.uk. Retrieved 2015-05-20.
- ↑ Archived March 8, 2013 at the Wayback Machine
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