MOHAN Foundation

Multi Organ Harvesting Aid Network
Formation 1997 (1997)
Type non-government charity
Purpose Organ Donation
Headquarters Chennai, India
Founder
 Sunil Shroff
Website www.mohanfoundation.org

MOHAN Foundation is a not-for-profit, registered non-government charity organization in India [1] that works in the field of deceased organ donation and transplantation.[2] MOHAN is an acronym for Multi Organ Harvesting Aid Network. It has offices in Chennai, Hyderabad, Bengaluru, Delhi and information centers at Visakhapatnam, Coimbatore and Chandigarh.

History

MOHAN Foundation was first conceived in 1996 and was started in 1997 in Chennai,[3][4] It was founded by urologist and transplant surgeon Sunil Shroff.[5][6][7] It has its headquarters in Chennai, Tamil Nadu, India.

Promoting organ donation

Sand Sculpture made as a part of Rally organised by MOHAN Foundation at Marina Beach

In 1994, the Indian parliament passed the Transplantation of Human Organ Act that accepted brain death for organ donation and made organ commerce a punishable offense. For the first time in India it was possible for the deceased to donate their organs and tissues provided the family consented to organ donation.[8][9] India follows informed consent, unlike Spain and some of the other European countries that follow presumed consent. There are 23 organs in the human body and one can donate kidney, heart, liver, lungs, pancreas and the small bowel as well as tissues like cornea, skin, bone, tendons, cartilage and heart valves.[9][10][11][12] However, due to the lack of awareness level among the public and medical professionals, this concept of organ donation in India needed a shift in attitudes.[13][14]

The foundation organizes awareness talks among public through meetings, holds rallies, organizes programmes in colleges and offices with organ donation as a theme, sensitizes police and hospital staff on issues related to donation and from time to time honors organ donor families. Donor cards and brochures related to organ donation and brain death are distributed at such events.[15][16][17][18][19][20][21][22][23][24] MOHAN Foundation organised an "Organ Donation Rally" at Marina Beach, Chennai. A first-of-its-kind sand sculpture on organ donation was also created on the sands of the Marina beach. [25] Rajasthan did its first deceased donor due to efforts of the Foundation in set up the Rajasthan Network for Organ Sharing Registry (www.rnos.org).[26] Similar registries were set up for Kerala (www.knos.org.in) and Tamil Nadu (www.tnos.org)

Associated celebrities

Delhi Chief Minister Sheila Dikshit signs on the pledge board at the MOHAN Foundation fundraiser event in the capital, before signing it


Celebrities like actors, cricket players, religious leaders and politicians have been used to popularize the concept of organ donation and create public awareness about the cause.

Former Captain of India Kapil Dev Pledges his support for organ donation by signing the Donor Card. Also in picture to the left Dr.Sunil Shroff, Managing Trustee, MOHAN foundation and to the right Dr.Meyeppan, President of Urological Society of India.

In India, Priyanka Chopra, Anil Kumble, Revathi Menon, Madhavan, Suniel Shetty, Sivakumar, Kiran Rao, Raveena Tandon, Navjot Singh Sidhu, Gautam Gambhir, Farah Khan, Nandita Das, Aamir Khan and Anand Gandhi are some of the celebrities who have promoted and pledged their organs.[27][28] [29][30][31] Actress Aishwarya Rai Bachchan has promoted eye donation in the past.

In April 2012, Sheila Dikshit, the Chief Minister of Delhi, became the first chief minister in India to pledge her organs when she signed a pledge board on organ donation at an event held in Delhi.[32]

In 2014, Former Captain of India Kapil Dev Pledges his support for organ donation by signing the Donor Card.

Organ donor card

Organ Donation Card

Donor cards express one’s desire to donate organs after death and have been used by MOHAN Foundation to create awareness and get organ pledges. Over a million such cards in English and regional Indian languages have been distributed by the foundation in over a decade.[33][34] In a major organ donation drive in March 2012 called DAAN, it partnered with HCL Technologies along with Apollo Group of Hospitals, Chennai Police, Indian Medical Association, Cadaver Transplant Programme(Govt. of Tamil Nadu) and received 12,900+ pledges from policemen, doctors and corporate employees. This was the largest organ donation campaigns in the country at that time.[35][36] However this record was superseded by the Times of India (TOI) in July - August 2013. TOI partnered with four NGO’s in the field of organ donation - Shatayu, Gift Your organ, Gift a Life and MOHAN Foundation to create awareness and received 50,000 plus pledges for organs.[37][38]

Training transplant coordinators

A transplant coordinator is a medical professional - a doctor, an allied healthcare professional or a medical social worker - who coordinates activities related to organ donation. One of their core functions is to counsel the families of a brain dead individual for organ donation.[39] These coordinators can act as link between hospitals, citizens, donors and patients requiring organ donation.[40] The foundation provides training for coordinators including courses of one week, one month, 6 months and one year in length. These training programmes have partly been funded by one of the oldest philanthropic institutions in India, Sir Ratan Tata Trust & Navajbai Ratan Tata Trust. Coordinators are trained in medical, legal and ethical aspects related to organ donation and are also imparted soft skills for grief counseling. The structured training ensures that they are able to approach and counsel the families of brain dead patients for organ donation.[41][42][43][44]

Coordinators facilitate organ donation and transplantation in a positive environment and provide support to the donor family.[45] From 2009 to 2012, 334 transplant coordinators were trained, helping to improve the organ donation rate in India.[46] The foundation partners with The Transplantation Society, Indian Society of Nephrology, the Indian Society of Organ Transplantation, World Health Organization, Transplant Procurement Management (TPM) of Spain to conduct national workshops for transplant coordinators.[47][48][49] Training programme of one week are held along with other similar NGO’s like Shatayu and Government organizations like Zonal Transplant Coordination Committee of Maharashtra and Karnataka to train the Transplant coordinators in different cities besides Chennai like Ahmadabad, Mumbai, New Delhi and Bangalore.[50]

Online organ registry

Registries for organ allocation ensure fair, equitable and transparent distribution of organs and ensure that harvested organs are not wasted for want of recipients. They help to make sure that no one jumps the waiting list queue.[51] In 2005 the Indian Society of Organ Transplantation initiated an Indian Transplant Registry where expertise was provided by technical staff of MOHAN Foundation.[52][53][54] In 2009 the Cadaver Transplant Programme of the Government of Tamil Nadu used the previous experience of the foundation in creation of a registry for deceased donors and transplantation.[55] Similar registries was created for the Department of Health, Government of Kerala in 2012[56] and the Department of Medical, Health and Family Welfare, Government of Rajasthan in 2014.[57][58] The Government of India also has a plan for national organ registry.[59]

Overcoming organ shortage

The shortage of organs has been an international phenomenon and India has been no exception.[60] This has led to organ trade and has often stigmatized the noble concept of organ donation.[61][62] However the promotion of the deceased donation programme especially in states like Tamil Nadu and Andhra Pradesh has meant more organs and has had some impact on lessening the organ commerce.[63][64][65]

References

  1. ↑ "NGO Partnership System". Ngo.india.gov.in. Retrieved 2013-11-04.
  2. ↑ "Partners - Times Of India". Articles.timesofindia.indiatimes.com. 2009-10-19. Retrieved 2013-11-04.
  3. ↑ "Life after death - Our commitment - Tata group". Tata.com. 2012-12-31. Retrieved 2013-11-04.
  4. ↑ "Organ donation by two changes 8 lives". Hindustan Times. Retrieved 2013-11-04.
  5. ↑ "Mixing compassion and technology". The Hindu. 2001-01-14. Retrieved 2013-11-04.
  6. ↑ "Expert Talk - Dr Sunil Shroff » DoctorNDTV for the better health of Indians". Doctor.ndtv.com. Retrieved 2013-11-04.
  7. ↑ "From grief to joy! The inspiring story of a social entrepreneur - Rediff.com Business". Rediff.com. Retrieved 2013-11-04.
  8. ↑ Agarwal, SK; Srivastava, RK; Gupta, S; Tripathi, S (2012). "Evolution of the Transplantation of Human Organ Act and law in India". Transplantation 94 (2): 110–3. doi:10.1097/TP.0b013e31825ace15. PMID 22728294.
  9. 1 2 "Ministry of Law, Justice and Company Affairs : The Transplantation of Human Organs Act, 1994" (PDF). Health.bih.nic.in. Retrieved 2013-11-04.
  10. ↑ "Health Dept". Health.bih.nic.in. Retrieved 2013-11-04.
  11. ↑ Shroff, S (2009). "Legal and ethical aspects of organ donation and transplantation". Indian journal of urology : IJU : journal of the Urological Society of India 25 (3): 348–55. doi:10.4103/0970-1591.56203. PMC 2779960. PMID 19881131.
  12. ↑ Jamie Borg (2010-04-17). "Diary of a transplant co-ordinator: 'The donor's family hug him... I'm always so humbled by this selfless act of giving' | Mail Online". Dailymail.co.uk. Retrieved 2013-11-04.
  13. ↑ "Journal of the Academy of Hospital Administration". Indmedica. 1995-02-04. Retrieved 2013-11-04.
  14. ↑ Amalraj R Edwin, D Raja. "Attitudes of health care professionals towards organ donation Edwin AR, Raja D". Indian J Urol. Retrieved 2013-11-04.
  15. ↑ "Sharing organs, saving lives". The Hindu. 2012-01-23. Retrieved 2013-11-04.
  16. ↑ "Rally to promote organ donation". The Hindu. 2012-01-22. Retrieved 2013-11-04.
  17. ↑ "Making organ donation a movement". The Hindu. 2010-08-13. Retrieved 2013-11-04.
  18. ↑ "Organ donation camp held". The Hindu. 2007-08-18. Retrieved 2013-11-04.
  19. ↑ "Organ donation cards distributed to 150 students". The Hindu. 2012-05-03. Retrieved 2013-11-04.
  20. ↑ "Creating awareness of organ donation". The Hindu. 2011-08-29. Retrieved 2013-11-04.
  21. ↑ "Panacea Biotec Limited : Panacea Biotec Observes Organ Donation Day, Mohan Foundation Organizes Awareness Camp in the Company Premises". 4-Traders. 2013-08-06. Retrieved 2013-11-04.
  22. ↑ "Painting competition sponsored by 'Mohan Foundation' - An NGO who works on the issue of Organ donation - CoolAge". Coolage.in. 2013-07-19. Retrieved 2013-11-04.
  23. ↑ "Inter-collegiate film competition". The Hindu. 2010-09-15. Retrieved 2013-11-04.
  24. ↑ "Over 350 pledge their organs at Shivaji College - Times Of India". Articles.timesofindia.indiatimes.com. 2013-09-06. Retrieved 2013-11-04.
  25. ↑ http://www.thehindu.com/todays-paper/tp-national/tp-tamilnadu/students-join-hands-for-the-cause-of-organ-donation/article2827563.ece
  26. ↑ http://timesofindia.indiatimes.com/city/jaipur/6-year-old-boy-becomes-first-cadaver-donor-in-state/articleshow/46161367.cms
  27. ↑ "You are here: Home > News >". Mid-day.com. 2004-09-26. Retrieved 2013-11-04.
  28. ↑ "MOHAN Foundation launches organ donation programme in Coimbatore". The Hindu. 2011-02-14. Retrieved 2013-11-04.
  29. ↑ "Priyanka pledges to donate her organs - Times Of India". Articles.timesofindia.indiatimes.com. Retrieved 2013-11-04.
  30. ↑ "Telugu actor Navdeep pledges to be an organ donor at Mohan foundation". Ibnlive.in.com. Retrieved 2013-11-04.
  31. ↑ "Gautam Gambhir lends a hand to a noble cause". The Hindu. 2011-11-11. Retrieved 2013-11-04.
  32. ↑ "Sheila Dikshit signs organ donation pledge". The Hindu. 2012-04-05. Retrieved 2013-11-04.
  33. ↑ "‘One consent saves 9 lives’ - The Times of India". Timesofindia.indiatimes.com. Retrieved 2013-11-04.
  34. ↑ "Organ donor card launched in Tamil". Expressindia.indianexpress.com. 1999-03-29. Retrieved 2013-11-04.
  35. ↑
  36. ↑ "13,000 sign up for organ donation - Times Of India". Articles.timesofindia.indiatimes.com. 2012-03-28. Retrieved 2013-11-04.
  37. ↑ "About Organ Donation | I Lead India Youth Brigade - An initiative by The Times of India". Timesofindia.indiatimes.com. 1970-01-01. Retrieved 2013-11-04.
  38. ↑ "TOI campaign on organ donation garners 50,000-plus pledges - The Times of India". Timesofindia.indiatimes.com. Retrieved 2013-11-04.
  39. ↑ "MOHAN (Multi Organ Harvesting Aid Network) Foundation - IGNOU Community College". Mfcc.edu.in. Retrieved 2013-11-04.
  40. ↑ "Doc donating new mindset on organ donation - Times Of India". Articles.timesofindia.indiatimes.com. 2012-01-07. Retrieved 2013-11-04.
  41. ↑ "Training for nurses". The Hindu. 2010-02-28. Retrieved 2013-11-04.
  42. ↑ "Organ donation". The Hindu. 2011-11-29. Retrieved 2013-11-04.
  43. ↑ "Rural family donates son's organs". Hindustan Times. 2010-10-08. Retrieved 2013-11-04.
  44. ↑ "'Brain-dead' woman's organs donated on Mother's Day eve". Hindustan Times. Retrieved 2013-11-04.
  45. ↑ "Life after death - Our commitment - Tata group". Tata.com. 2012-12-31. Retrieved 2013-11-04.
  46. ↑ "SRTT & NRTT | Institutional grants | Health | Transplant Coordinators Training Programme – Phase II". Srtt.org. 2013-07-03. Retrieved 2013-11-04.
  47. ↑ "A Global Presence - National Workshop of Transplant Coordinators". Tts.org. Retrieved 2013-11-04.
  48. ↑ "National Workshop of transplant coordinators provides guidelines". The Hindu. 2013-03-07. Retrieved 2013-11-04.
  49. ↑ "Andhra Pradesh / Hyderabad News : Workshop held for transplant coordinators". The Hindu. 2010-08-21. Retrieved 2013-11-04.
  50. ↑ "'Better coordination makes organ donation possible' - Times Of India". Articles.timesofindia.indiatimes.com. 2011-11-29. Retrieved 2013-11-04.
  51. ↑ "State’s transplant registry comes alive". The Hindu. 2012-12-24. Retrieved 2013-11-04.
  52. ↑ Shroff, S (2007). "Indian Transplant Registry-www.transplantindia.com". Transplantation proceedings 39 (3): 711–3. doi:10.1016/j.transproceed.2007.01.051. PMID 17445578.
  53. ↑ Shroff, S (2007). "Indian transplant registry". Indian Journal of Urology : IJU : Journal of the Urological Society of India 23 (3): 272–277. doi:10.4103/0970-1591.33724. PMC 2721606. PMID 19718330.
  54. ↑ "Welcome to Indian Transplant Registry". Transplantindia.com. Retrieved 2013-11-04.
  55. ↑ "Tamil Nadu Organ Sharing Registry – Share Organs Save Lives". Tnos.org. 2013-08-31. Retrieved 2013-11-04.
  56. ↑ "Kerala’s transplant registry comes alive". The Hindu. 2012-12-24. Retrieved 2013-11-04.
  57. ↑ Raj promises to address problems of liver transplant patients
  58. ↑ Online registry for organ donation in state now a reality
  59. ↑ "Government of India Ministry of Health and Family Welfare : 2013" (PDF). Mohfw.nic.in. Retrieved 2013-11-04.
  60. ↑ Robinson, Simon (2008-02-01). "India's Black Market Organ Scandal - TIME". Content.time.com. Retrieved 2013-11-04.
  61. ↑ "WHO | The state of the international organ trade: a provisional picture based on integration of available information". Who.int. Retrieved 2013-11-04.
  62. ↑ Abouna, GM (2008). "Organ shortage crisis: Problems and possible solutions". Transplantation proceedings 40 (1): 34–8. doi:10.1016/j.transproceed.2007.11.067. PMID 18261540.
  63. ↑ "Andhra Pradesh / Hyderabad News : Mohan Foundation gets 100th organ donation". The Hindu. 2010-11-04. Retrieved 2013-11-04.
  64. ↑ "Improvements in Deceased Organ Donation in India". Tts.org. Retrieved 2013-11-04.
  65. ↑ Sandhya Srinivasan. "Has Tamil Nadu turned the tide on the transplant trade?". BMJ. Retrieved 2013-11-04.
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