Orphanet

Orphanet is a European website providing information about orphan drugs and rare diseases.[1] It contains content both for physicians and for patients. Its administrative office is in Paris and its official medical journal is the Orphanet Journal of Rare Diseases published on their behalf by BioMed Central.

References

  1. Aymé, S; Schmidtke, J (December 2007). "Networking for rare diseases: a necessity for Europe". Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 50 (12): 1477–83. doi:10.1007/s00103-007-0381-9. PMID 18026888.

External links