HDBuzz

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HDBuzz

HDBuzz homepage at 16th November 2011
Web address hdbuzz.net
Commercial? No
Type of site Huntington's disease research news platform
Created by Dr Ed Wild and Dr Jeff Carroll[1]
Launched January 18, 2011[1]
Alexa rank negative increase 2,708,939 (February 2014)[2]
Current status Active

HDBuzz is a non-profit website that supplies news about Huntington's disease research in plain language.

Overview

HDBuzz was launched in January 2011 by Huntington's disease researchers Dr Ed Wild (UCL, London) and Dr Jeff Carroll (Western Washington University). Its stated aim is to supply "the latest news about Huntington's disease research in plain language, written by scientists who work on HD".[1]

As well as being accessible at hdbuzz.net, news is syndicated to a number of Huntington's disease community web sites,[3][4] as well as via social media routes including Facebook, Twitter and email.[5]

HDBuzz articles are published in English and translated by volunteers into nine other languages.[5]

Support

HDBuzz is financially supported by national and regional Huntington's disease patient and family organizations. Among the eleven supporting organizations are the Huntington's Disease Society of America (HDA), Huntington Society of Canada (HSC) and the Huntington's Disease Association of England & Wales.[5]

A policy on neutrality of funding sources precludes HDBuzz from receiving "funding or support from drug companies or anyone else with a vested interest in a particular therapy for HD", while funding organizations "do not receive special access to" or "editorial control over [its] content.".[6]

HDBuzz is a registered charity in the UK.[7]

Oversight

An oversight committee of "independent clinicians, scientists and lay community members" scrutinizes HDBuzz content "to ensure ... content is impartial, scientifically accurate and understandable". Emmy award-winning journalist and Huntington's disease advocate Charles Sabine is a Consulting Publisher to HDBuzz.[8][9]

Recognition

  • The HDBuzz project was presented at the 2011 World Congress on Huntington's Disease.[10]
  • HDBuzz received the 2011 Award for Scientific Communication by the Huntington's Disease Association of Northern Ireland (HDANI).[11]
  • In November 2011, HDBuzz was the subject of an editorial article in the scientific journal Trends in Molecular Medicine, published by Cell Press.[5]
  • HDBuzz editors Dr Jeff Carroll and Dr Ed Wild received the 2012 Michael Wright Community Development Award from the Huntington Society of Canada.[12]

References

  1. ↑ 1.0 1.1 1.2 HDBuzz (2011-01-18). "Welcome to HDBuzz". HDBuzz. Retrieved 2011-11-19. 
  2. ↑ "Hdbuzz.net Site Info". Alexa Internet. Retrieved 2014-02-02. 
  3. ↑ "Huntington's Disease Society of America - HDBuzz". Hdsa.org. Retrieved 2011-11-19. 
  4. ↑ "Huntington Society of Canada: Research news by HDBuzz". Huntingtonsociety.ca. Retrieved 2011-11-19. 
  5. ↑ 5.0 5.1 5.2 5.3 Wild, E. J.; Carroll, J. B. (2011). "HDBuzz: Empowering patients through accessible education". Trends in Molecular Medicine. doi:10.1016/j.molmed.2011.09.003. 
  6. ↑ "HDBuzz - Funding". HDBuzz. Retrieved 2011-11-19. 
  7. ↑ "UK Charity Commission Registry entry for HDBuzz". Retrieved 2011-11-22. 
  8. ↑ "HDBuzz - People". HDBuzz. Retrieved 2011-11-19. 
  9. ↑ "HDBuzz - FAQ". HDBuzz. Retrieved 2011-11-19. 
  10. ↑ "World Congress on Huntington's Disease: Oral Abstracts - 2011". Clinical Genetics (Wiley) 80 (s1): 1–13. doi:10.1111/j.1399-0004.2011.01736.x. Retrieved 2011-11-19. 
  11. ↑ "Huntington's Disease Association Northern Ireland: News". HDANI. Retrieved 2011-11-19. 
  12. ↑ "Michael Wright Award announcement (Twitter)". Retrieved 13 November 2012. 

External links

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