Stephen Heywood

From Wikipedia, the free encyclopedia

Stephen's profile on the website set up by his brothers and friend Jeff Cole to help people with ALS

Stephen Heywood (April 13, 1969 – November 26, 2006) was an American builder and self-taught architect, specialising in the renovation of old houses.[1]

Diagnosed with ALS in 1998, aged 29. He was the subject of His Brother’s Keeper, written by the Pulitzer Prize winning author Jonathan Weiner, and the documentary film, So Much So Fast, which premiered at the 2006 Sundance Film Festival.

Stephen Heywood was a catalyst in the ALS research field, driving scientists and leaders to find effective treatments for ALS patients. He is survived by his wife, Wendy (Stacy) Heywood and son, Alexander Stephen Heywood; two brothers, James Heywood, and Benjamin Heywood, co-founder of a website for patients with ALS and other neurological disease, PatientsLikeMe.com.[2]; and his parents, John Heywood, Sun Jae Professor of Mechanical Engineering, and Peggy (Gilkerson) Heywood.

Stephen lived in Newton, Massachusetts with his wife and son until his death at age 37. He died from a detached respirator in November 2006.

[edit] External links

So Much So Fast Frontline
PatientsLikeMe.com, a website for patients with ALS and other neurological conditions, set up by Stephen's brothers Jamie and Ben Heywood