User:Sfterry

From Wikipedia, the free encyclopedia

Sharon F. Terry (born November 16, 1956), is a social entrepreneur in the health advocacy sector. She founded PXE International, with her husband, Patrick Terry, after the diagnosis of her children with pseudoxanthoma elasticum (PXE) in 1994.

She is the current President and CEO of Genetic Alliance. Her work includes advocating for the Genetic Information Nondiscrimination Act. She serves on boards for the Institute of Medicine, National Institutes of Health, Coalition for 21st Century Medicine and National Coalition for Health Professional Education in Genetics.

References http://www.alacrastore.com/storecontent/voxantcq/2007te03149703d43

External links
http://www.geneticalliance.org http://www.pxe.org