E-Patient
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e-Patients (also known as Internet Patient, or Internet-savvy Patient) are health consumers who use the Internet to gather information about a medical condition of particular interest to them. The term encompasses both those who seek online guidance for their own ailments and the friends and family members (e-Caregivers) who go online on their behalf. e-Patients report two effects of their online health research: "better health information and services, and different (but not always better) relationships with their doctors."[citation needed]
e-patients are increasingly active in their care and are demonstrating the power of the Participatory Medicine model of care. They are equipped, enabled, empowered, engaged, equals, emancipated and experts.[citation needed]
- Equipped with the skills to manage their own condition.
- Enabled to make choices about self-care and those choices are respected.
- Empowered
- Engaged patients are engaged in their own care
- Equals in their partnerships with the various physicians involved in their care
- Emancipated
- Expert patients can improve their self-rated health status, cope better with fatigue and other generic features of chronic disease such as role limitation, and reduce disability and their dependence on hospital care.[citation needed]
Based on the current state of knowledge on the impact of e-Patients on the healthcare system and the quality of care received:
- A growing number of people say the internet has played a crucial or important role as they helped another person cope with a major illness. [1][2]
- Since the advent of the Internet, many clinicians have underestimated the benefits and overestimated the risks of online health resources for patients.[3][4]
- Medical online support groups have become an important healthcare resource.[citation needed]
- The net friendliness of clinicians and provider organizations—as rated by the e-patients they serve—is becoming an important new aspect of healthcare quality.[citation needed]
- This is one the most important cultural medical revolution of the past century, mediated and driven by technology.[citation needed]
- The impact of the e-Patient cannot be fully understood and appreciated in the context of pre-internet medical constructs.[citation needed] Research must combine expertise from specialties that are not used to work together.
The proportion of e-Patients in selected patient populations seem to be highest in the US and Canada.[citation needed] European countries seem to lag.[citation needed]
[edit] See also
[edit] References
- ^ Finding Answers Online in Sickness and in Health, 5/2/2006, Pew Internet.
- ^ The Impact of the Internet on Cancer Outcomes, G. Eysenbach, CA Cancer J Clin 2003; 53:356 doi: 10.3322/canjclin.53.6.356
- ^ Are Physicians Ready for Patients With Internet-Based Health Information? J Med Internet Res 2006;8(3):e22; doi:10.2196/jmir.8.3.e22
- ^ Analysis of Cases of Harm Associated With Use of Health Information on the Internet, JAMA. 2002;287:2869-2871
- Ferguson, Tom; Frydman, Gilles (May 15, 2004). "The first generation of e-Patients (Editorial)" (Full Text). BMJ 328: 1148–1149. doi: .
- Dan Hoch; Tom Ferguson (August 2005). "What I've Learned from E-Patients". PLoS medicine 2 (8): e206. doi: . PMID 16060721.
- Cees MJ van Woerkum (01 Apr 2003). "The Internet and primary care physicians: coping with different expectations". American Journal of Clinical Nutrition 77 (4): 1016S–8.
- Podiatry Online: Accommodating the Internet-Savvy Patient
- Susannah Fox, Pew Internet & American Life Project (9/27/2004). Today’s E-Patients: Hunters and Gatherers of Health Information Online.
- Laura Landro, Senior Editor, The Wall Street Journal (June, 13, 2007). The Growing Clout of Online Patient Groups.
- Barbara K Rimer, DrPH; Elizabeth J Lyons, MPH; Kurt M Ribisl, PhD; J Michael Bowling, PhD; Carol E Golin, MD; Michael J Forlenza, PhD; Andrea Meier, PhD (01 Apr 2003). "How New Subscribers Use Cancer-Related Online Mailing Lists". Journal of Medical Internet Research 7 (3): e32. doi: .
- Andrea Meier, PhD; Elizabeth J Lyons, MPH; Gilles Frydman; Michael Forlenza, MPH, PhD; Barbara K Rimer, DrPH (April 2007). "How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists". Journal of Medical Internet Research 9 (2): e12. doi: .
- Judy Feder, Danny Sands, MD. (February 25, 2008). "A Reader and Author Respond to “ePatients: Engaging Patients in Their Own Care”". Medscape J Med. 2008; 10(2): 46. 10 (2): 46.
[edit] External links
- E-patients With a Disability or Chronic Disease, from the Pew Internet and American Life Project
- Association of Cancer Online Resources (ACOR), an aggregate of e-patient online communities for knowledge-sharing about cancer.
- E-Patients Prefer eGroups to Doctors for 10 of 12 Aspects of Health Care. 1999 article by Dr. Tom Ferguson.
- The First Generation of E-Patients in BMJ (British Medical Journal)