Talk:Dystonia

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[edit] The

The description on this page is taken verbatim from dystonia-foundation.org. They do have a copyright notice (at [1]), and I think this may qualify as copyvio. Suitov 14:07, 9 Jun 2004 (UTC)

Cleaned up by JE on 19.07.2005. Further development to follow with references.

RE: dystonia entry

Hello Veinor,

I received your message and note that all the external links relating to 'dystonia' have now been removed. My non-profit support/research organisation was no different from all of the other organisations listed under EL.

I have read your external links policy and realise that Wikipedia is not a web directory but I would like to point out the information contained on my website does expand on the brief definition on Wikipedia derived from copy taken from the DMRF's website. Your unbiased editors may wish to visit my site and assess the dystonia information for themselves. [www.dystoniaaustralia.org.au]

You have no external links listed under dystonia and yet 'support groups' have their own category under 'essential tremor', another movement disorder. Curiously 'We Move' (one of the organisations previously listed as an external link in the dystonia EL list) is still listed here. It would be great if you could include a support groups section under dystonia as patients with this little-known condition are very much alone in their suffering and sometimes suicidal. If anything, they rely on sites like yours to seek out further information. I hope you reconsider the dystonia orgs data and look forward to hearing from you.

Nicsie 01:25, 16 November 2006 (UTC)

[edit] History section

I am watching "Twisted" on PBS and a woman said it was not known in 1972. When was it named? We need a history section.

It was identified well before then, and the term dystonia was first used in 1911, but it has been very obscure until recently. Most research has been done since the 1980s. Yes, a history section would be good. MeekMark 01:55, 1 February 2007 (UTC)