Talk:Arnold-Chiari malformation

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[edit] Appropriate Title?

On all the other websites I have seen, the Arnold-Chiari malformation refers to Chiari Type II malformation([1], [2], [3]). Has anyone else found that in their research? If so, this page is incorrect because is refers to the "Arnold-Chiari malformation" as being another name for "Chiari Type I malformation". I'm not quite clear on this, so maybe some else can confirm this. Thanks! Doctorsoph (talk) 05:00, 28 May 2008 (UTC)


[edit] Can

Can an arm impingement be a catalyst in an Arnold Chiari tramua. I did not know I had this until I experienced an explosion of pain in my arm and later found out that I had this Malformation but at the same time I had an shoulder impingment?

I also have ACM. Based on my memory of comments from my neurologist, I would say that an arm problem cannot cause ACM. I gathered that ACM was a condition from birth, but may not present symptoms for years (or never). You can't "cause" ACM. In my case, I was talking about a childhood diving-into-kiddypool incident. FractureTalk   04:50, 5 September 2006 (UTC)
IIRC it can be genetic OR aquired. There was a research published about two fighter pilots having Chiari, for example. But yes either way, a patient may be symptom free, and then some outside factor may trigger the symptoms and possibly worsen the herniation. 24.236.189.199 21:34, 9 January 2007 (UTC)
My wife has ACM Type 1, developed syringomyelia and had decompression surgery to treat it. ACM is a genetic malformation that is usually unnoticed until early adulthood or later. Some people with ACM may not develop any noticeable symptoms. You cannot develop ACM, nor can anything cause it. ACM is the most common cause of syringomyelia, which might also be caused by trauma, tumors and other rare disorders. An arm problem cannot cause ACM or syringomyelia, but the diving-into-kiddypool incident could certainly cause spinal damage. You would need an MRI to determine whether that spinal damage includes a syrinx.
Matthew 1130 14:39, 26 February 2007 (UTC)

[edit] Specialists

I believe this section should be deleted as it is simply a type of advertising. I don't see that this section provides any benefits to our readers. Please speak now, or forever hold your peace. Matthew 1130 14:39, 26 February 2007 (UTC)

Agreed. Removed. --Lipothymia 01:53, 14 March 2007 (UTC)


i agree with you matthew i have this problom and this did not give me any imformation.

I did have chiari type 1 and I thought that it went away!!! I have my headaches back and my balance has gotten even worse!!! Can you get the chiari back after having the sugery in 2002???? Please e-mail me at cremy012003@aol.com —Preceding unsigned comment added by 208.108.198.31 (talk) 14:32, 22 October 2007 (UTC)

Chiari cannot be cured. Decompression surgery is just a treatment method, that has variable results. Peoplesunionpro 09:13, 10 November 2007 (UTC)

[edit] CHIARI PATITSEN

HI,

MY NAME IS MAMIE ZERBE AND I HAVE CHIARI TYPE 1 MY DOCTOR TOLD ME THAT I NEE AN OPRATION AS SOON AS I CAN BECAUSE I HAVE HEADACHES 24/7 AND I ALSO HAVE NOSE BLEEDS TOO.

I AM REALLY SCARED OF THIS OPRATION BECAUSE I NEVER HAD THIS KIND BEFORE . IS THERE ANY INFORTATION BESIDES WHAT I FOUND ON THE INTERNET ? IS THERE A BOOK THAT I COULD GET FROM A LIBARARY TO READ UP ON THIS CHIARI TYPE 1 AT ALL ? YOU CAN CALL ME AT <removed phone number> I LIVE IN STRAUSSTOWN PA . PLEASE TELL ME MORE IF YOU CAN THANK YOU.

MAMIE ZERBE

Wikipedia is not a good place to ask questions like this. Try doing an internet search on the name of the disease and the words "support group" or "discussion". WhatamIdoing (talk) 03:27, 13 April 2008 (UTC)

[edit] External links

Wikipedia's external links policy and the specific guidelines for medicine-related articles do not permit the inclusion of external links to non-encyclopedic material, particularly including: patient support groups, personal experience/survivor stories, internet chat boards, e-mail discussion groups, recruiters for clinical trials, healthcare providers, fundraisers, or similar pages.

Wikipedia is an encyclopedia, not an advertising opportunity or a support group for patients or their families. Please do not re-insert links that do not conform to the standard rules.

External links are not required in Wikipedia articles. They are permitted in limited numbers and in accordance with the policies linked above. If you want to include one or more external links in this article, please link directly to a webpage that provides detailed, encyclopedic information about the disease. I have improved several of the links here, so that they go to "information about ARM" pages instead of "please donate" pages. Thanks, WhatamIdoing (talk) 03:27, 13 April 2008 (UTC)

Yes. For World Arnold Chiari Malformation Association, Do not Change it. The Acuate link is [Wacma.org]. S.T.H. ( P/T/C ) 17:16, 14 May 2008 (UTC)
Here is the text from the "acuate" link you added:
"WACMA is a nonprofit organization through which parents and friends can support the music department at Central High School. Our board coordinates volunteer work, raises funds and acts as an advocate for the arts. Membership in the West Allis Central Music Association includes all parents and/or legal guardians of student members of the West Allis Central High School Bands, Choirs and Orchestras. Officers consist of a President, Secretary, Treasure and Parent Representatives and Directors from each musical organization. We welcome your support and invite you to attend board meetings held in the band room, on the first Tuesday of each month at 6:00 P.M. Our next meeting is April 3, 2007 at 6:00 P.M."
Now if you can possibly explain what the West Allis Central Music Association has to do with Arnold-Chiari malformation, then I'm ready to listen. WhatamIdoing (talk) 22:38, 15 May 2008 (UTC)

[edit] New links

I added the following:

71.191.3.39 (talk) 12:06, 9 May 2008 (UTC)

I dont think these should be in the article. S. T. H. 23:10, 15 May 2008 (UTC)
You can delete external links from an article if you think that they are inappropriate. If you can point to a reason in WP:ELNO or WP:MEDMOS#External links that supports your personal opinion, or you can explain your reasons well enough to convince other editors, then they'll actually stay deleted. WhatamIdoing (talk) 02:37, 17 May 2008 (UTC)
These would about insomnia not ACM. It May be a side effect but not a ACM link. Trees Rock Plant A Tree! 15:09, 17 May 2008 (UTC)