Talk:Trigeminal neuralgia

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Re: the Neurontin recall. Per Pfizer and the FDA, this was a recall of one lot of 100 mg capsules of Neurontin in 2005 and not a general recall of all Neurontin, which is still being prescribed. Unless someone has information to the contrary, this information should probably be corrected or removed. ~MD

[edit] agreed - comment should be removed

I agree. I saw that and was quite surprised since I use Neurontin like many other people. It's still on the market. Karn 23:46, 21 March 2006 (UTC)

[edit] Various

It says there is no cure, but then it says surgery is effective in 75% of cases. Doesn't that mean that surgery is a cure (though not a universal one)? The paragraph on homeopathy should probably get a NPOV warning stamp. Zargulon 10:57, 29 September 2006 (UTC)

I've put a "verification needed" on the homeopathy section; I am of the opinion that if nobody can cite a source it should be removed. Opinions anyone? PeteThePill 23:49, 1 October 2006 (UTC)

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Not sure this is how to do it but here goes:

 Discussion always benefits from those who have suffered the disease and studied it widely. 

Your Symptoms Section- needs more info:

I am an a-typical TGN case. Like you stated in your article under Symptoms, a-typical TGN is so severe and the constant stabbing pain is similar to and often mistaken for migraines. I was misdiagnosed with migraines, later chronic daily headache with associated a-typical facial pain. I also sought treatment of a dentist(tooth was crowed twice), endodontis( root canal in the same tooth- which incidentally was the trigger for the full out assault by the TGN) and oral surgeon whom I had remove the tooth and nerves in hopes of ending the pain. It only got worse. I also had severe sinus complaints and saw one of the finest specialist in the nation with no luck. This too is a symptom. It is well documented (by just about any article you can read on google or Web MD that these are early warning symptoms and there needs to be some discussion added to assist the searcher in discovering the many ways TGN is masked and hard to diagnose. Links provided to any one of numerous articles on this very issue should be added.

When discussing the treatments I believe some of the following should be added:

I was diagnosed with a -typical TGN by Drs. Casey and Jannetta who were instrumental in pioneering the micro-vascular decompression surgery. I had a MVD June 14, 2005. I'm scheduled for a revision MVD in December 2006. If your article icluded links published articles regarding the treatments and their sucess rates readers would find articles written by Drs. Casey and Janneta stating that on average only 57% of A-typical TGN patients beneifit from a single surgical procedure. Further, that among the remaining 43%, the sypmtoms will reappear on the avg. of 1.9 years and require a second MVD with an expected post operative success rate then ranging between 87-95%. (By the way numbers vary widely as to both sets of stats and this needs addressed and linked)

Drug therapies need some further discussion:

Two of the more widely used drugs for TGN as mentioned in the article are Tegretol and Neurontin. There exist numerous articles via Google that while these drugs are very useful both as a diagnostic tool for TGN and for managing the disease, there can be severe side effects and liver toxcicity which often prevent their long term use and thereby lengthen the disease process before ultimately resulting in other treatments avenues. It would be helpful to dicuss this so that the reader would be informed of the side effects and carefully monitor his/herself thus reducing the time wasted by the he/she on these drugs before exploring other treatment avenues.  Crossed referennced articles or PDR info relevant to tolerance, severe side effects and possible toxcicity, should be included in an effort to truley inform the reader.

I've never used this site and meant only to comment on the article. All the info discussed is readily avaiable using Google searches of Drs. Casey and Jannetta as well as Web Md and the PDR. Thank you for allowing me to "comment" only- not to edit.