User:Eysen

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(the following is copied and pasted from a Wikipedia article which has been flagged for deletion as I dared to make edits here)

Gunther Eysenbach
Image:Eysenbach.JPG
Gunther Eysenbach
Born March 22, 1967 (age 40)
Flag of Germany Berlin, Germany
Residence Flag of Canada Toronto, Canada
Field Healthcare
Institution http://www.ehealthinnovation.org/user/91
Known for EHealth, Consumer health informatics

Gunther Eysenbach, MD, MPH, is an health policy, eHealth and consumer health informatics academic, whose research and advocacy focuses on the use of Internet and ICT by patients and consumers. Eysenbach is editor and publisher of the Journal of Medical Internet Research [1], and is also known for his research and advocacy for open access publishing. Eysenbach is initiator of the WebCite system, an archiving service for scholarly authors and editors citing webpages.

Contents

[edit] Biography

Eysenbach was born on March 22, 1967, in Berlin, Germany. He received a Medical Doctorate from University of Freiberg in Baden-Württemberg, Germany, and a Master of Public Health from Harvard School of Public Health, Boston, MA [2]. From 1999-2002 he founded and headed a Research Unit on Cybermedicine and Ehealth at the University of Heidelberg [3] and organized a World Congress on Internet in Medicine [4]. In March 2002, he emigrated to Canada [5] and, as of Nov 2006, is currently Senior Scientist at the Centre for Global eHealth Innovation at the University Health Network in Toronto, Canada [6], and Associate Professor at the Department of Health Policy, Management and Evaluation, University of Toronto [7].

[edit] Publications and Contributions

[edit] Selected Articles

I. Eysenbach G, Powell J, Kuss O, Sa ER. Empirical studies assessing the quality of health information for consumers on the World Wide Web: A systematic review. JAMA 2002; 287: 2691-2700

  • Review of the quality of health information on the web
  • Selected by JAMA to be included in the AMA press release, and covered globally in lay media including Reuters Health News.
  • Policy impact: Cited in a recent policy document of The Council on Ethical and Judicial Affairs (CEJA) of the American Medical Association (AMA) “Use of Health-Related Online Sites”

II. Eysenbach G, Köhler C. How do consumers search for and appraise health information on the World-Wide-Web? Qualitative study using focus groups, usability tests and in-depth interviews. BMJ 2002; 324: 573-577

  • Published observation of how people search the web for health information in a usability lab.
  • Paper nominated for the 2002 Diana Forsythe Award, awarded by American Medical Informatics Association’s (AMIA's) People & Organizational Issues Working Group, is for the best paper (journal or AMIA Symposium) published over the last year (Spring 2001-Spring 2002) at the intersection of medical informatics and social science.

III. Eysenbach G, Diepgen TL. Evaluation of Cyberdocs. Lancet 1998; 352 (9139): 1526

IV. Eysenbach G, Diepgen TL: Responses to unsolicited patient e-mail requests for medical advice on the World Wide Web. JAMA. 1998;280:1333-1335.

  • JAMA study was accompanied by an editorial "On Call and On-line: Sociohistorical, Legal and Ethical Implications of E-mail for the Patient-Physician Relationship" by Alissa Spielberg
  • JAMA and Lancet studies together led to more than 50 press stories, 15 radio interviews, and more than 10 TV broadcasts
  • Policy impact: Influenced and contributed to subsequent policy papers and guidelines around the issue of using email in the clinical setting, such as "e-Risk for Providers: Understanding and Mitigating Provider Risk Associate With On-Line Patient Interaction" (Medem Inc.), AMA, GMC, BMA, GPC, RCGP and various medical indemnity organisations drafted guidance for patients and clinicians on patient/doctor e-consultation. JAMA study was also cited in a recent policy document of The Council on Ethical and Judicial Affairs (CEJA) of the American Medical Association (AMA) “Ethical Guidelines for Use of Electronic Mail Between Patients and Physicians”

V. Eysenbach G, Diepgen TL: Towards quality management of medical information on the internet: evaluation, labelling, and filtering of information. BMJ 1998;317:1496-1500

  • Selected by the British Medical Journal to be accompanied by an editorial
  • Policy impact: Inspired AMA to issue guidelines. Paper is cited in AMAs policy “Guidelines for Medical and Health Information Sites on the Internet” published by the American Medical Association (JAMA. 2000;283:1600-1606), governing editorial content, advertising, sponsorship, privacy and confidentiality and secure electronic commerce for its Web sites.
  • Ideas presented in this paper led to projects funded by the European Union and coordinated by Dr. Eysenbach, addressing the quality of health information on the web: MedCERTAIN and MedCIRCLE.

VI. Eysenbach G. Citation Advantage of Open Access Articles. PLoS Biol 2006; 4(5): e157

Seminal article showing that open access articles are cited more frequently than non-open access articles.

[edit] Journal

Journal of Medical Internet Research (http://www.jmir.org)

  • Founded by Eysenbach in 1999 as a peer-reviewed open access journal on all aspects of research, information and communication in the healthcare field using Internet and Intranet-related technologies. Eysenbach is publisher and editor-in-chief.
  • Selected for indexing in Medline [Index Medicus], CINAHL, Information Science Abstracts, INSPEC (Institution of Electrical Engineers), Communication Abstracts, The Informed Librarian Online, Library and Information Science Abstracts (LISA), Embase, Scopus, Current Contents, Science Citation Index Expanded, and other bibliographic databases
  • In 2002, selected as Official Journal of the Internet Healthcare Coalition
  • In 2003, selected as Official Journal of the Society for Internet in Medicine

[edit] Books

  1. Lewis, D.; Eysenbach, G.; Kukafka, R.; Jimison, H.; Stavri, Z. (eds.): Consumer Health Informatics. Springer New York 2005, ISBN 0-387-23991-X
  2. Eysenbach, G. (ed.): Medicine and Medical Education in Europe - The Eurodoctor, Stuttgart-New York: Thieme 1998, ISBN 3-13-115221-4
  3. Eysenbach G, Lamers W (eds.): Praxis und Computer. (in German) Düsseldorf: Springer-Verlag/med-inform Verlagsges. 1999 2 Bde., ca. 1800 Seiten, DM 248,-
  4. Eysenbach, G.: Computer-Manual für Mediziner und Biowissenschaftler. (in German) München-Wien-Baltimore: Urban & Schwarzenberg 1994, ISBN 3-541-11841-5

[edit] Awards

  • 2002 Ferguson Distinguished Achievement Award: "Eysenbach is one of the most productive researchers, editors, and publishers in the online health field" [8] cached
  • 2004 Janssen-Cilag Future Award (Zukunftspreis) [9] cached
  • 2006 AMIA Distinguished Paper Award [10]

[edit] Interviews and Press Reports (selected)

  • Open-Access Journals: An Expert Interview With Gunther Eysenbach. Medscape Critical Care. 2006;7(1) [11] (requires free registration)
  • Cybermedicine. CLARE THOMPSON TALKS TO CYBERPHYSICIAN GUNTHER EYSENBACH. BMJ 1999;319;1294 [12] cached
  • e-Health: Medical Advice from Cyberspace. Aventis Magazine [13] cached
  • Cyberdocs could be deadly. BBC News Online, November 6, 1998 [14] cached
  • further (older) press reports and TV/radio interviews [15]




/ end of wikipedia article /

[edit] Wikipedia: Open Access & Archiving activism

[edit] Disclosure

As part of my work as an academic I am an open access editor/publisher and involved in WebCite, a not-for-profit consortium of publishers interested in archiving scholarly important material.

I hope that the Wikipedia community will eventually adopt WebCite as a tool to cache/archive cited webpages to avoid the hundreds or thousends of hours wasted by editors trying to restore links that have ceased working (aka linkrot). I advocate WebCite as I truly think it is useful (and is successfully being used by the Journal of Medical Internet Research and other scholarly journals since many years. I do make policy suggestions to the Wikipedia community in that context, hereby disclosing above interest.

[edit] What I am advocating/supporting in the Wikipedia context

WebCite is not a company, but a non-profit consortium of publishers (mostly open access publishers). WebCite in turn is member of an international community of archiving services, of which the Internet Archive, the Library of Congress and other institutions are a part of.

WebCite has been designed to allow people (authors, editors) to repair broken links, and/or - even better - to avoid them in the first place. If you come across a broken link on Wikipedia, you can try to repair it by searching http://www.webcitation.org/query?url=URL&date=DATE, where URL is the URL that is broken and needs to be restored. The DATE variable is optional and indicates the caching date. For example, http://www.webcitation.org/query?url=www.pewinternet.org/pdfs/PIP_Health_Report_July_2003.pdf&date=2005-12-31 retrieves a copy of the URL http://www.pewinternet.org/pdfs/PIP_Health_Report_July_2003.pdf which is closest to the date of Dec 31st, 2005. WebCite has been mentioned in a recent New York Times article "Courts Turn to Wikipedia, but Selectively", Jan 29th, 2007 [16], citing [Lawrence Lessig], "a professor at Stanford Law School who frequently writes about technology, said that he favored a system that captures in time online sources like Wikipedia, so that a reader sees the same material that the writer saw. He said he used www.webcitation.org for the online citations in his amicus brief to the Supreme Court in Metro-Goldwyn-Mayer Studios v. Grokster Ltd., which “makes the particular reference a stable reference, and something someone can evaluate. (…)”. Note that in this context, WebCite is being advocated if somebody cites Wikipedia articles (my proposal here refers to using WebCite for citing other resources in Wikipedia articles).

Important: WebCite allows on-demand prospective archiving and is not crawler-based, i.e. pages are only archived if the author has requested archiving when he cited the piece for the first time, which is highly recommended. In other words, no cached copy on WebCite will be found if the author or somebody else hasn't cached it beforehand. In other words, if you are an author, archive the links you want to cite (see citation formats below). For caching/archiving a page at the time you cite your sources, go to WebCite and use the "archive" menu option, or create the WebCite bookmarklet, which will allow you in the future to cache all pages you are looking at by just clicking a button in your bookmarks folder.

As suggested on http://en.wikipedia.org/wiki/Wikipedia_talk:Citing_sources#WebCite a citation method/template/etc that yields something like the following:

and if the URL is no longer available or no longer contains the information:

As another user (jesup) wrote: Extensive discussion of this has occurred on the External links talk page. The consensus appears to be roughly that a) discussion of how this should be done should move there, b) that the format should retain the original URL as a link, c) editors should be given guidance on services for caching and their attributes, as well as their policies towards Wikipedia citations.

Further ideas/to do list:

  • create/test a wiki bot which automatically archives all webpages cited by the wikipedia community [17] - Volunteers?
  • editing the existing bibliographic templates [18] to add a field for URLs that contain an archived snapshot (possibly even a field for the WebCite ID, in analogy to having a field for the DOI)
  • Respective Wikipedia policies on external links [19], citing sources [20], and dead links [21] need to be updated. They all only mention Internet Archive, which is a US-centric view, failing to mention other archiving services such as those collaborating in the International Internet Preservation Consortium (WebCite has been invited to become a member).
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