Talk:Howel-Evans syndrome

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My 7 year old daughter has been recently diagnosed with the Howell-Evans Syndrome. She is in extreme pain, takes pain medication daily and uses a wheelchair. We are desperately looking for more information and also for help in treating this condition. PLEASE if anyone can help us contact us at rkr1998@msn.com Thank you.....

My friend Dan Durick died on may 31st 2005 with Evans Syndrome
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