Talk:Central pontine myelinolysis
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I had my Liver transplant 2/7/99. When I first came back from recovery room.I was fine.2 days later I had a stroke. Then 3 days later I went into a coma for 3 weeks. When I woke up from the coma. I had no memeries,I could not move, talk,Think. There was nothing in my brain I was for all reason a new born baby.I did not know what people were, what I was even.I could not communicate at all because I had no Knowledge In my brain,No feeling physically. I did not know how to move my body. My brain and body were not connecting. Like a spark plug trying to connect.They told me 1 time that my Husband was here to see me. I had no Idea what a Husband was.I've had to learn what words were again and what they meant.I had to learn everything, to do with taking care of my body. My Brain would wake up a little bit at a time. Sometimes it might be my feeling of physical touch or learing to cook again,Brush my teeth and what were teeth.What is love How do you learn what Love, Hate, Envy, hunger. go to the bathroom. I had no idea what anyone, anything was. The past almost 4 years I've come along way. Thanks to Our Father in Heaven.My Husband and son whould sit and teach me how to say the words the right way. After about 1 yr I knew what some things were .And to wake up to this world like it is, Scared me bad. I have no Memery of the world being this way. How do you learn that the world was this bad. My mind sometimes gets to be overwhelming to me. In the first year I had no Idea what I was, Who I was. I have some brain damage from before my transp.And alot more from the C.P.M.I have a brain tumer from my transp.I lost all short term memories. I had end stage Hep C, Cirroses The DRs at Philadelphia told me I had about 1 week to live on the 8th day I had my liver.I never thought I get a liver because of the lifestyle I had lived in my youth. I always thought I was not worthy.I have been blessed by God . I had stong faith in him before and even more after my transplant. You have to believe in God for you to have Peace in your soul.I knew my Father would not let me come this far and drop me. When I went into the or I told my family That I'd see them in Heaven or I will be back here with them. Either way Was fine with me. I still have a very hard time talking. I have a kind of accent,People ask me where are you from,or Can you speak English? Which I do have fun with them. I will say sorry no can speak. My balance is very bad I've fallen down so many times and broken both my feet at I time and 2 more times Broke my Left foot.People always say be carefull, Like I want to fall down and break something again. They mean well. And I've had to put notes all around the house to remind myself when I'm cooking To take my meds. Don't let anyone in the home, when my husband is not home. I still have a childness about my thinking, When I get excited My speech is so bad I don't know what I'm saying myself. We laugh alot it has not been a hardship.all the times. My family is quite large on my Husbands side and our side is getting smaller,But the do try to be patient with me. I hardley talk on the phone, It's very hard for me to talk. I do Thank God for my comp, Someone heard about me and donated this comp.to me. And I thank him everyday. For now I feel like I'm back in touch with the world and people again.I found out he's a fellow Christain. and he did not know I was saved to.God is wonderfull. A friend and I have started a HEP C. group in Delco.I live in the Philladelphia area This has made me feel like I'm living again, I'm thinking, communicating, and I'm still a pretty good speller. I just happy to alive again. May our Father in heaven Bless & keep you & yours safe in his palm forever Glade I'm alive Linda
